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Each of us has a voice that needs to be heard
regarding the things that affect us. The Kim Foundation is here
to help in letting your voice be heard. We want to educate both
you and others about issues that affect those with mental illness.
We have dedicated this section to your voices. You may wish to either
share your story or learn about the experiences of others. Whatever
the case may be, remember you are not alone. Consumers, family members,
friends, and professionals alike have shared the following information
with us. We are pleased to pass it on to you.
If you would like to help us help others please click
here to email questions, suggestions, or information. Your
voice will be heard.
Parents in the Omaha community who have lost a child to suicide have come together to form P.O.S.T. (Parents of Suicides Together) Support Group. This group was formed to support other parents and family members after the loss of a child to suicide.
P.O.S.T. meets twice per month at St. Andrew’s Episcopal Church, 84th and Pacific, in Omaha, Nebraska.
For more information or to inquire about attending, please contact Laraine Peck at (402) 496-0309 or via email at lpeck@tconl.com.
The Children’s Services Initiative together with the Nebraska Federation of Families for Children’s Mental Health have developed three brochures aimed at helping families access mental health and substance abuse services for their children.
In addition to accessing needed services, the brochures address the topic of psychiatric medications for youth and include a list of questions you may want to consider asking your child’s physician or pharmacist.
Click on the following links to download or view the brochures:
Accessing Mental Health and Substance Abuse Care for Nebraska Children
Your Child and Psychiatric Medications
Adolescents and Psychiatric Medications
What does it feel like to have attention deficit disorder?
The answer to that question can be found in a report from the Journal of Pediatric Nursing called “I Have Always Felt Different.” The article gives a glimpse into the experience of attention-deficit hyperactivity disorder, or ADHD, from a child’s perspective.
Assistant professors Robin Bartlett and Mona M. Shattell, from the School of Nursing at the University of North Carolina at Greensboro, interviewed 16 college students who had been diagnosed with ADHD as children. The investigators talked to them about how the disorder affected life at home, school, friendships, and what their parents did to help them.
"I Have Always Felt Different" is summarized in Tara Parker-Pope’s health blog “Well” in The New York Times.
Click here to access the article
Anyone who has experienced the bipolar express can feel alone and isolated. You think no one else can possibly understand the day-to-day trials and tribulations associated with an episode. As I am sure you have been told, you are not alone.
The problem often lies with your own guilt, maybe because you want to fix your loved one who suffers from this mental illness. But you know you cannot fix their condition, you can only find solutions and strategies. This is not failure, only reality.
One word of advice, do not isolate yourself from the outside world because you feel that no one will understand, or they will think you are weird. There are thousands of people who are probably feeling the same way you do.
For me, when I talk about my son's illness it gives me a chance to make them aware of what bipolar really is. I usually do not use technical terms, as most people have a hard time understanding what I am trying to convey. The most useful way to communicate is to break it down with examples, "picture words" that illustrate things in a way that's easier to understand. Nine times out of ten, I find there are people out there going through a lot of what I have been through, only with different circumstances. Although I don't usually gain any additional information, I often gain the comfort of knowing that some one else deals with their own bipolar express.
Some people find comfort in support groups. I have found comfort in reading, researching, and sharing my experience with others. I have found some great advice and solutions by talking to others regarding my son and my mother, both of whom have bipolar disorder.
Not all the advice will work and I know that the ones that do work today may not work tomorrow. I look at it as a learning experience. There have been as many books published on the subject as different perspectives and situations that others have gone through. I recently read parts of "The Bipolar Child," and "Heathers Rage." When I was reading sections of these books, I was thinking, "Wow, my son does this," and, "oh, he did that, too." Or "my son hasn't done that, but I might want to prepare myself for this just in case."
I feel on certain days that I can go forward full steam ahead and the next I might be a little less determined, but one thing I know for certain, I am not alone.
About The Author: Stacey Adams supports her mother and child, both of whom have bipolar disorder. Stacey is a contributing writer for www.BipolarCentral.com.
Suicide is the third leading cause of death
for 15- to 19-year-olds in the United States. Most youth who attempt
suicide show some warning signs beforehand. If your child seems
constantly depressed, angry, or withdrawn, pay attention and
encourage communication.
Click here to learn
of words, actions, and feelings to watch for.
The Agency for Health Research and Quality (AHRQ)'s new guides outline the latest scientific evidence on antidepressants, including how well the medicines work and their potential side effects. The guides, one written for clinicians, the other for patients, explain that about 6 in 10 adult patients get some relief from the drugs. In addition, about 6 in 10 experience at least one side effect, ranging from nausea to sexual dysfunction.
AHRQ's new guides summarize information on a dozen second-generation antidepressants: bupropion (sold as Wellbutrin), citalopram (Celexa), duloxetine (Cymbalta), escitalopram (Lexapro), fluoxetine (Prozac), fluvoxamine (formerly sold as Luvox), mirtazapine (Remeron), nefazodone (formerly Serzone), paroxetine (Paxil), sertraline (Zoloft), trazodone (formerly Desyrel), and venlafaxine (Effexor).
The guides can be found on the AHRQ Web site, http://effectivehealthcare.ahrq.gov/.
NAMI has designed a guide to inform families about
evidence-based practices (EBPs) in children's mental health and
to share information on an array of treatment and support options
available.
Knowledge is power and informed families are in
the best position to advocate for the most effective treatment and
supports for their child and family.
Click
here to access the complete guide.
This guide describes symptoms of Obsessive Compulsive
Disorder (OCD), appropriate treatment, OCD in the classroom, and
where families can find information and support.
Click
here to access the guide.
The Nebraska Family Support Network invites family
members of children ages birth to 21 to participate in their family
operated support group. The group works to connect families with
children experiencing either psychiatric, behavioral, or emotional
disorders.
The Support Group meets on the third Tuesday of
every month from 7:00 p.m. to 9:00 p.m. at the First Christian Church,
6630 Dodge Street Room 211. There is no fee or referral required
to attend.
For more information please contact the Nebraska
Family Support Network at (402) 345-0791 or (800) 245-6081.
NAMI lists this book as one of the best, most
recent, comprehensive, and easily read books on how to help a loved
one, and the rest of the family, cope with schizophrenia.
It provides “state of the art tools for
mastering extraordinary challenges” notes NAMI Medical Director
Ken Duckworth, based on the premise that families are natural, lifetime
support systems. The book is divided into six parts.
- An overview of schizophrenia
- Special issues for family members
- Preventing relapses
- Creating a supportive environment
Coping with specific problems
- Improving quality of life
Each part contains chapters offering a wealth
of practical information. One chapter discusses “establishing
household rules and sharing responsibilities,” while another
addresses “anger and violence.” Other chapters discuss
“work and school” and “independent living and
self-care skills.” Sill another involves “planning for
the future.”
The book provides a vision of recovery, while
acknowledging that recovery is a lifelong journey. For families
that are facing the onset of schizophrenia or who have been confronting
it for years, it is an invaluable resource.
Use this link to purchase The Complete Family
Guide to Schizophrenia now from Amazon.com,
and NAMI will automatically receive a portion of the sale.
“Parenting with a Mental Illness:
Programs and Resources Guide” has been published by the UPenn
Collaborative on Community Integration to help the estimated millions
of parents in the United States who are living with a mental illness.
Select programs throughout the United States are featured in addition
to a variety of fact sheets and resources available to anyone in
the Country.
Click
here to download your own copy of the Guide.
The United Healthcare Children's Foundation is
offering support to meet the needs of children across the United
States with assistance grants for medical services not fully covered
by health insurance.
Parents and caretakers across the country will
be eligible to apply for grants of up to $5,000 for healthcare services
that will help improve their children's health and quality of life.
Examples of the types of medical services covered by UHCCF grants
include speech-therapy, physical therapy, and psycho-therapy sessions;
medical equipment such as wheelchairs, braces, hearing aids, and
eyeglasses; and orthodontia and dental treatments.
Any child 16 years old or younger living
in any UnitedHealthcare region of the United States and in need
of financial assistance for healthcare services will be considered
eligible for a grant. Families must meet economic guidelines, reside
in the United States, and be covered by a commercial health insurance
plan.
For additional information please visit http://www.uhccf.org/.
Introduced in the 1990s, psychiatric advance
directives, commonly called PADs, offer a way for people with mental
illnesses to plan ahead for a mental health crisis. PADs are legal
documents that typically specify treatment instructions and appoint
a designated health care agent, among other actions.
A newly launched online national resource center is now providing
comprehensive information on psychiatric advance directives.
The National Resource Center for Psychiatric
Advance Directives (NRC-PAD), developed by psychiatric and legal
experts at Duke University Medical Center and the Bazelon Center
for Mental Health Law, went online in January. Its web address is
http://www.nrc-pad.org.
The developers hope that the website will serve as an online gathering
place for people with mental illness and their families, as well
as for clinicians, to learn about PADs and how to complete the documents.
WRAP stands for Wellness
Recovery Action
Plan. The program was developed by a group
of people who had mental health difficulties and wanted to incorporate
tools and strategies in their lives that worked to keep them well.
With the help of two great kids, Hawk and Esther,
WRAP is now available for kids. The new book will guide a child
through the process of developing their own Wellness Recovery Action
Plan. It will help them discover all the things they can do to feel
good, stay well and even feel better when the going is hard. It
starts with listing all those good and fun things that they can
use to develop their action plans like running with the dog, coloring
and talking to a friend.
Then, using these tools, the book guides them
through the process of listing:
- What they need to do every day to stay healthy
and well
- Things that might upset them if they happen
and what they can do if these things do happen
- Signs that they are not feeling well and things
they can do to help them feel better
- Signs that things are going really badly and
things that they can do to make the situation better.
Once they have completed their WRAP, they will
have a powerful personal guide to daily living. As they get older
they may want to revise or update their plans or even develop new
ones.
As children develop and use these plans it helps
to have supportive parents, teachers and other adults who provide
encouragement and praise as they grow, change, make good decisions
and take positive action in their own behalf.
Developing a WRAP is creative, fun and life changing
for everyone involved.
For additional information please visit
http://www.mentalhealthrecovery.com
or e-mail books@mentalhealthrecovery.com.
The Center for the Advancement of Children's Mental
Health has compiled a selection of resources that may help you learn
more about children's emotional and behavioral disorders, and provide
helpful information for parents, families, and professionals who
care for our youth. Visit their website
to access links to various resources, including disorder profiles,
treatment options, and current projects.
How is bipolar illness diagnosed? What advice
would you give someone in recovery from bipolar? What advances are
being made in the research and study of bipolar?
These are just some of the questions addressed
in a series of 13 short videos now available online from NAMI's
2006 convention. The videos feature questions-and-answers with Dr.
Thomas Insel, Director of the National Institute of Mental Health,
Dr. William Lawson of Howard University Medical School, and John
McMananmy, consumer and author.
The interviews were conducted through a
partnership with HealthCentral.com, and are available for viewing
on HealthCentral's BipolarConnect Website.
This guide is designed to provide parents and
caregivers information about childhood depression. Its goal is to
help those who touch the lives of children recognize the signs and
symptoms of depression as well as provide resources and information
to act on such concerns.
Depression is one of the mental disorders that
can appear during childhood and adolescence. Today 1 in 33 school-aged
children and 1 in 8 adolescents suffers from clinical depression.
Click
here to download A Parent’s Guide to Recognizing and Treating
Depression in Your Child. |