1. What must be done NOW in order to prevent our current system from
further deterioration?
"Increase the assessment services available,
so that data-based decisions about the number of additional inpatient
beds needed can be accessed."
"Increase funding streams for non-privately
insured patients to cover the increased costs of doing business
for agencies."
"Develop a Dual Diagnosis Facility and increase
the assessment opportunities so that the usual 6-9 month wait for
diagnosis, then placement, is eliminated."
"Create a stronger referral base in order
for the services of a community-based program to become more effective."
"Create opportunities for education. Through
education, we can reach the clientele Before they hit the crisis
stage that might require hospitalization (which might not be available).
By keeping Nebraskans apprised of the current mental health care
issues and trends, changes in health care to combat deterioration
will have more support. Help all community agencies communicate
their Mission."
"Another opportunity for Education is to
initiate discussions with the Douglas County Board regarding the
role of the DCMHC in the provision of mental health services, and
why they do not provide comprehensive services."
"Decrease waiting time for patients to be
transferred to Regional Centers so that acute care beds are reserved
for those who need them."
"Continue dialogue among agencies (police,
providers, government, community, etc.) to promote trust and cooperation."
"The Regional Centers, the Regions, the Providers
must be held to greater accountability for the services provided.
We must eliminate services that provide substandard care at a very
high cost. For example, the Regions could become an oversight organization,
brokering federal, state, and county funds to the private sector
in a way that requires high quality outcomes and efficiencies."
"Open more beds for inpatient care and provide
more hospital days for acutely ill clients to recover before they
leave the hospital."
"Stop referrals being made to homeless shelters
by hospitals, regional centers and other acute or emergency services."
"Consolidate programs and review expenses.
A sound business plan needs to be implemented that shows the direct
cost-benefit analysis of how much money the government can save
per each dollar spent on mental health versus the cost of ongoing
economic drain from lack of treatment."
"Understand the anguish of parents and children
who could not get the help they needed and be aware of the kids
who are without parents or advocates."
"Ensure that the chief clinical/administrative
officer has sufficient independent authority, personal strength
and credibility to be able to develop an objective and effective
plan and implement that plan, despite the tremendous political pressure
that will be brought to bear."
2. What 3 items would you list as essential short-term goals,
and why?
"Adequate inpatient resources, expansion
of Assertive Community Treatment programs, add more rehabilitative
housing. Recognizing that there will always be those unable to function
independently, the provision of safe care and housing will avoid
repeated crises and re-hospitalization."
"Establish community teams for crisis management.
Provide more community-based services to preclude hospitalization
and/or emergency room visits and address mental health issues early.
Establish a crisis center so that ER’s are not “dumped
on” as the provider of last resort and misusing emergency
capabilities."
"Develop a Leadership Committee with funders,
business leaders, service providers, and consumers totaling no more
than 12 people. Develop a business plan with economic breakdown
to reduce waste. Involve the media and to develop a marketing plan."
"Hold programs more accountable to clients
and community."
"Stop the cuts in Medicaid funding. Medicaid
is all we have to fund children’s behavioral health services
today. Aggressively pursue all federal dollars available. Don’t
lose federal participation through cuts or ineligibility. We also
need leadership and commitment to obtain available federal grants."
"Continue to work with the insurance industry
for mental health parity."
"Establish assessment programs that are immediately
accessible."
"Consolidate the regional centers."
3. Are there other issues that must be
addressed for Immediate Action?
"Housing, job training/placement opportunities, transportation
for the mentally ill as part of their treatment plan."
"Inability to place patients immediately
in Regional Centers is a constant frustration."
"State Government must begin to look at behavioral
health treatment for children as a primary function of state government.
The behavioral health needs of children in Nebraska cannot continue
to be compartmentalized with some of the responsibility being held
by various programs that do not work together and rarely collaborate
in sharing funds. We must have a unified system that brings prevention,
mental health, substance abuse, Medicaid, Juvenile Justice, education,
and child protective services under one roof."
"Have a consensus from local treatment providers
outlining patients that need regional center care (sex offenders,
for instance). Address the lack of effectiveness of the Regions
relating to planning and long-range vision and their conflict of
interest."
4. Over and Over, we hear that we have failed to achieve
a Common Vision for Behavioral Health Care. What are the first steps
you believe must be undertaken to form a common vision?
"Analyze why we have failed to develop a
common vision. A Leadership Group could be developed that would
solicit feedback from the agencies and the government groups. Leadership
should come from the corporate community so that all turf issues
are left behind. Are there strategic planning processes already
available to use as models for our community vision?"
"We need additional community-based services
in this state. Those services need to include transitional, supportive
housing, dual diagnosis treatment, insurance support for treatment
crises, and training of professionals. There is a need to cut through
the political entanglements that have prevented change. We need
to put aside our differences and look at the overall big picture."
"Use the known problem solving steps: identify
the problem, gather the data, analyze and synthesize it, develop
solutions, implement and evaluate. Students would be willing to
assist with in-depth research."
"Be aware that the needs of the SPMI differ
from the needs of the persons with acute mental health crisis, and
are different from the needs of children with behavioral illness.
This leaves us talking of apples and oranges. The needs of both
types of consumers must be addressed by the system, but the system
will appear different to these different consumers."
"Maybe instead of having mental health professionals
deciding for clients and the community, we need to be asking clients
and the community what they need and identify as concerns."
"We need to focus our actions so that we
can change the system into one that gives people access to the services
they need delivered in a way that ensures continuity of treatment
and effective patient-focused communication among providers. Unfortunately,
the publicly funded mental health system is highly politicized.
The people running agencies are set up to compete, not collaborate.
The system is fraught with distrust, territorialism, dysfunction,
and arbitrary administrative systems. It is a system that must rely
on public funds for survival. “Mental Health funding is, unfortunately,
basically a dog fight.” We lack leadership."
5. If you could define the vision yourself, what would it
include?
"Accessible, compassionate, comprehensive
community based services based on latest research and best practices.
Providing the appropriate level of mental health care at anytime
to whoever needs it, maximizing use of federal and state financial
resources supporting mental health initiatives. Cooperation throughout
the community in financing and providing services. Cooperation from
HHSS particularly in grant applications."
"Focus on the whole person and the whole
family, not just the diagnosis."
"Government should be the brokers and funders
of services. Their primary role should be the purchase of highest
quality service. Service providers should be held accountable for
agreed outcomes."
"Cutting the role of Government (including
the HHSS and Regions) in direct service provision would free up
money for direct services by the private sector. The funds should
flow to patient care through adapted best practice research."
"Funds saved by smaller government could
be used to provide prevention programs and community-based programs."
"In order to achieve meaningful change in
the overall behavioral health of the youth of Nebraska, we will
have to develop a strong link between child care, K-12 education,
and all the funding and service streams that we now include in the
behavioral health systems."
"Acute care facilities must permit patients
to stay until they are actually functioning. Seven days for acute
schizophrenic relapse is ridiculous. Then the client should be transitioned
to the next level of care. We can’t just drop the patient
off at home or at homeless shelters. Continuity of care is essential.
My vision would permit NO wait lists, fragmentation, (such as treatment
of co-occurring illness or discriminatory treatment.)"
"Reconstruct the guidelines in order to reduce
waste."
6. How would you contribute to the development of a dual diagnosis
center?
"All Behavioral Health Services should be
equipped to serve dual diagnosis clients. Outpatient services should
be structured to assess and provide both substance abuse and mental
health needs"
"We must assure a continuous funding stream
is available to support on-going care. We are unable to negotiate
the state/regional funding streams to assure provision of services."
"We cannot stop at the development of a parallel
system and we must strive for treatment that treats both diagnoses
as equal issues providing simultaneous treatment. Persons with SPMI
do not do well in most treatment programs designed for persons without
SPMI, as the level of confrontation is too great, and they find
it difficult to establish peers. A Dry House for short-term crisis
intervention substance abuse treatment for persons with SPMI would
alleviate additional issues."
7. How should we approach the issue of Medicare/Medicaid funding?
"Medicaid funding for outpatient care is significantly lower
than Medicare and Region 6 reimbursement. If a strong community-based
system of care is to develop, Medicaid rates would need to be increased.
The State will also need to look at expanding the rehab options
that could expand Medicaid coverage. Nebraska Government needs to
work with federal officials to fund treatment equitably for adults
and children, focus more on outpatient services, and reduce management
entanglements that currently exist."
"Nebraska does not currently take advantage
of every federal dollar available."
"Medicaid should be applied for, as a matter
of course, as part of the discharge planning, for those admitted
to Regional Centers for Treatment. This planning and application
for Medicaid needs to begin upon admittance."
"We could reduce the administrative burden
to prove a certain level of care is required."
"Medicaid leaders in the state do not seem
to understand the system or be aware of the need for rehabilitation
services."
"Educate the Nebraska state leaders of Medicaid
about the mental health system and the needs of the mentally ill."
"Services approved for Medicaid funding go
for years prior to state implementation and therefore Nebraska looses
millions of federal matching funds. When we restrict Medicaid eligibility
for various services, the State ends up paying the whole bill if
not in the Behavioral Health System, than through medical bills,
corrections, homelessness, etc."
"During this year’s HHSS Appropriations
Committee hearing, it was stated that the regional centers are loosing
significant federal dollars because they are not billing properly.
Perhaps corporate leadership would help to correct the billing system."
8. What other issues would you like to comment on concerning Setting
Goals?
"There needs to be a sense of urgency on
setting realistic goals and getting planning started.
"We need parity in the insurance provision
for behavioral health and physical health needs."
We must all share the same strategic vision for
mental health care and understand that every service must be somehow
related to that vision. We need leadership in the field of Mental
Health.
"Mental Health professionals should commit
to taking full responsibility for their clients’ needs instead
of constantly passing and referring them on. If one professional
is ultimately responsible for the client, the patient is less likely
to slip through the cracks."
"There needs to be a common mission statement
for Nebraska’s mental health system. Agencies have their own
mission statement, but we need one common statement amongst all."
9. We all know that it will take collaboration and cooperation
to develop a Blueprint for Action. How would you divide the areas
of responsibility for crafting this Blueprint
"Crisis planning related to current critical
issues."
"System redesign for community based services
with elimination of regional centers."
"Building public awareness and support."
"We need governmental leadership. The government
holds the financial cards."
"Think in terms of AT LEAST 5-year blocks
of commitment to issues, not annual funding."
"Patients and families have a responsibility
to be involved in changes."
"The private sector must take leadership
in developing new systems. Collaboration with the private sector
and organizations would develop a grassroots change agent. The responsibility
would then fall upon this collaboration to promote the type of legislative,
regulatory, and private sector changes needed."
"Areas to include: funding, finances, inter-agency
communication, intra-agency quality and efficiency, federal and
state regulations, public awareness, clinical expertise, consumer
perspective."
"We need a systems approach: financing will
probably be most successful if led by the business sector and legislature,
rather than HHSS, regions, or private providers."
"Committees need to focus on various health
and non-health factors that are contributing to the growing problem
of mental illness in the State of Nebraska."
"One person should head this mission, taken
it on as a business, and then be held accountable.
10. What strengths, assets, abilities, or experiences are
YOU willing to contribute to this Blueprint for Action?
"I would contribute based on my experience."
"As an administrator for outpatient community-based
providers."
"As a parent of a child with behavioral disorders."
"In budgeting and program development."
"As a provider of inpatient care."
"With discharge planning."
"In public education."
"And contacts nationally in the provision
of mental health care."
"And understanding of political and fiscal
systems."
"And enthusiasm and unbiased perspectives."
"And commitment to research, planning and
design."
11. What role would you assign the Kim Foundation in creating this
Blueprint for Action?
"Facilitating the process by convening key
players and providing support to make a planning process successful."
"Help develop a rational plan for mental
health treatment."
"Organize committees."
"Help to develop a strategic vision."
"Provide a central gathering point and dissemination
of information."
"Bring together the private and public sectors."
"Hold HHSS accountable for their attitudes."
"Bring in business and community leaders
and help with public relations."
"Hold discussions about the next steps when
LB 724 is passed."
"Be willing to confront some of the harder
systems issues that providers can’t address, like funding
streams."
"Serve as the liaison among community agencies,
the state of Nebraska, and the community."
"Remain a mental health advocate to the media."
12. Please give us a rough sketch of what your Blueprint
for Action would look like.
"Immediately assess the need for inpatient
service and begin planning as if the Regional Centers did not exist.
Start asking what services need to be developed or expanded to develop
a community-based integrated system. Add more transitional care
beds with supportive services. Determine a workable solution to
the problem of paying for the newest medications to control mental
illness."
"Integrate the funding from Medicaid, the
regions, and the regional centers. Be sure people have the long
term treatment they need to stay stable."
"Require the State to return to including transportation as
a case management service in Community Support."
"Reducing the current barriers in obtaining
CADAC licensure for master’s level counselors will provide
more trained personnel to fill CADAC positions."
"Increased numbers of dually certified counselors
would address the problem of limited professional resources and
eliminate the need for some agencies to hire high school graduates
just out of treatment to be ‘counselors’."
"Establish higher compensation rates for
dual diagnosis treatment."
"Consider how Nebraska wastes treatment time
and money. Medicaid officials need to change the Nebraska Medicaid
regulations to allow licensed mental health practitioners to diagnosis
and treat, without psychiatric supervision, all but the seven major
mental health diagnoses, as it is done in other states. Medicaid
is the only third-party payer in Nebraska that requires this level
of evaluation and supervision of licensed mental health practitioners.
It is an unnecessary cost, and involves a minimum 8-10 weeks wait
for a client to get an MSE, before treatment planning can even begin."
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